care.data decision helper

start or restart

Have you heard of care.data? yes | no

Have you read the care.data leaflet? yes | no

Did you understand it? yes | no

Do you think care.data is about making information available to doctors and nurses that you see outside your GP surgery? yes | no

Are you confused and unsure about care.data?
Do you need more time to make a decision?
Do you want to make a decision at a time of your choosing? yes | no

Are you happy that your GP data will not be anonymised when extracted and uploaded? yes | no

Are you happy about the types of information being extracted and uploaded from your GP records (once uploaded, you will not be able to modify your data)? yes | no

Are you happy that your GP will not be the data controller for your uploaded GP information (NHS England and HSCIC will control the data)? yes | no

Are you happy that you cannot prevent the release of your uploaded information in anonymised or pseudonymised (potentially identifiable) formats? yes | no

Are you happy that you cannot control who the HSCIC shares your information with, what information is shared, or for what purpose? yes | no

Are you happy that you can never get your uploaded information deleted? yes | no

Are you happy for the HSCIC to release/share any information (GP data or otherwise) that clearly identifies you? yes |no

Find out about care.data at care-data.info, and read the NHS article.
Opt out now: ask for both 9Nu0 and 9Nu4 codes to be added. You can opt-in at a later date.
Remember to opt-out your children if you have any.
Opt out now: ask for 9Nu0 code to be added.
Remember to opt-out your children if you have any.
You don't need to do anything.
Adapted from the PDF at care-data.info by Dr Neil Bhatia.